Thanks from the USA

We get a lot of ‘thank you’ letters and emails from grateful patients and their families, but some stand out, not least because of where they were sent from. Our ocular oncology team has recently treated a patient from Minneapolis in the USA, Stephan Orsak, who has travelled to the UK specifically to attend St Paul’s (we think he’s the first American patient to visit ocular oncology as well). Stephan has a medium-sized uveal melanoma and has written something of a narrative on his case. Here are some of the highlights which tell you about his reasons for coming to St Paul’s and his experience of the Royal.

Stephan Orsak and his daughter Kira“The reason I came to LOOC was the evident level of science as shown in the literature, and the expertise that can only come from a dedicated clinic. It must also be said that I am still astonished that the treatment option I underwent (Ru-106), an excellent fit for my situation, was not shared with me by any of the three ophthalmologists who examined me in the United States. Fortunately, a reading of the literature made it clear that it was not just a viable option, but one with a far better potential of preserving useful vision. For that, I thank the science and authors, and the ongoing efforts to publish as evidenced by LOOC's presence in the literature.

“I am happy to report that my acuity at this stage has returned mostly to where it was before. More importantly, I am delighted that I am experiencing absolutely no unusual diplopia [double vision]. Special credit for that is due to the obviously expert reattachment of a certain inferior oblique muscle, by a certain doctor worthy of special congratulations! [Stephan means Dr Lara Sandri!].

“I think it is exciting that the clinic not only does so much for so many individual patients, but that contributions over time can, and have, been made to the subject that yield benefits to all, wherever they may be. I hold the greatest of respect for Professor Heimann, who performed my first surgery and biopsy - his clarity of thought, his transparency and forthrightness, his subtle humour, his generosity of time, his expertise, and his obvious and personal concern for the individual patient.

As to the photo, Stephan continues with his story:

“Traveling long distances, one does not want to risk being late for the clinic. For that reason I planned a couple of extra days, just in case. My daughter, Kira, rented a car, met me at Gatwick, and we decided to use the extra time to drive into Wales, book into the youth hostel and summit Snowden together. And why not? A miserable diagnosis does not mean that life has ended. In fact, it is curious that there comes with it a new intensity that lends everything a special richness. We had a great time, in spite of the snow, ice, winds and lack of any view whatsoever at the top. Or maybe it was because of all of that. Anyway, well worth the effort, and wouldn’t have missed it for anything!”

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